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.  CHERUBS - The Association of Congenital
.  Diaphragmatic Hernia Research, Awareness and Support
.
Non-profit organization raising global CDH awareness, supporting all babies & families affected by CDH and
promoting research into the causes, prevention & best treatments of CDH since 1995.
CHERUBS Homepage
 What is Congenital Diaphragmatic Hernia?
 CHERUBS CDH Charity
 Congenital Diaphragmatic Hernia Research
 Congenital Diaphragmatic Hernia Awareness
 Congenital Diaphragmatic Hernia Support
 Congenital Diaphragmatic Hernia & CHERUBS News
 CDH Conference, Fundraisers, Get-Togethers and More
 Shop for CDH Awareness Gear
 Make a Tax-Deductible Donation to CHERUBS
Vote for CHERUBS and Mass General CDH Research Genetic Study for $250,000 for Congenital Diaphragmatic Hernia Research and Support!
Pregnant with a baby diagnosed with CDH?Raising a special needs child born with CDH?Grieving the loss of a child born with CDH?

CHERUBS

Welcome to the CHERUBS.

  1. Regional Forums Threads / Posts  Last Post

    1. CHERUBS USA

      Meet other CDH families in your state, your State Representative and Hospital Angels.

    2. CHERUBS International

      CHERUBS has members in 38 countries. Meet other CDH families in your country, your State Representative and Hospital Angels.

  2. News & Events Threads / Posts  Last Post

    1. CHERUBS News (Public)

      Updates on our organization, CHERUBS! Research, web site, newsletters, media, finances, legal, etc. If it's new, you'll find it here!

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      Forum Statistics:

      • Threads: 82
      • Posts: 645

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    2. In The Media (Public)

      The latest articles and shows involving CDH and/or CHERUBS members

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      Forum Statistics:

      • Threads: 99
      • Posts: 1,147

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    3. Web Site News, Questions, Issues, Etc (Public)

      (1 Viewing)

      Web site updates, issues, additions and general web site news.

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      Forum Statistics:

      • Threads: 60
      • Posts: 616

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    4. CHERUBS Conferences & Get-Togethers (Public)

      Public postings of our conferences and events. There is also a private members-only section to discuss details, travel arrangements, etc.

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      Forum Statistics:

      • Threads: 38
      • Posts: 279

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    5. CHERUBS Conferences & Get-Togethers (Private)

      National & International Member Conferences as well as State and Local Get-Togethers

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      Forum Statistics:

      • Threads: 68
      • Posts: 2,492

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  3. How You Can Help Threads / Posts  Last Post

    1. Prayer Requests (Public)

      This a PUBLIC forum to post prayer requests. We also have a private one available.

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      • Threads: 34
      • Posts: 514

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    2. Prayer Requests (Private)

      Prayer and well-wishes requests for CDH patients having trouble, family and friends and all other prayer requests

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      • Threads: 370
      • Posts: 9,546

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    3. Awareness Activities, Fundraisers, Angels for CHERUBS and more! (Public)

      (1 Viewing)

      Yes, YOU can make a difference in the fight against CDH! Creative ways to volunteer, info on where donations are needed most, our Angels for CHERUBS Program and much more!

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      Forum Statistics:

      • Threads: 322
      • Posts: 4,484

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    4. Save The Cherubs Campaign (Public)

      CHERUBS 2010 National Congenital Diaphragmatic Hernia Awareness Campaign. http://www.savethecherubs.org

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      • Threads: 34
      • Posts: 79

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    5. Adopt A Hospital Program (Public)

      Help CHERUBS to help CDH families by Adopting a Hospital in honor / memory of your cherub

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      • Threads: 5
      • Posts: 89

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    6. HOPE Totebag Program (Public)

      Help families of babies affected by CDH by helping CHERUBS provide information and support items through our totebag project

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      • Threads: 49
      • Posts: 284

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    7. CHERUBS Member Input

      Polls, helping us with printed materials, donation lists, new siblings, etc

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      Forum Statistics:

      • Threads: 32
      • Posts: 266

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    8. CDH Congressional Bills (Public)

      CHERUBS Congressional Bills for National Congenital Diaphragmatic Hernia Research and Congenital Diaphragmatic Hernia Awareness Protection. http://www.cdhbills.org

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      • Threads: 6
      • Posts: 24

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    9. On-Line Contests - Help Win Money for CDH!

      Your Vote Counts!

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      • Threads: 19
      • Posts: 58

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  4. Meet Our Cherubs & Families Threads / Posts  Last Post

    1. Stories of Survivors (Public)

      (1 Viewing)

      Stories of surviving CDH patients already printed in our newsletter, "The Silver Lining" and our book, "Stories of Cherubs" ***Please do not post your stories here (we'll post them for you after they are published) but please feel free to add updates to your stories or comment on other stories by using the Reply button on story post.***

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      Forum Statistics:

      • Threads: 199
      • Posts: 213

      Last Post:

    2. Stories of Cherubs In Heaven (Public)

      Stories of CDH patients lost that are already printed in our newsletter, "The Silver Lining" and our book, "Stories of Cherubs". ***Please do not post your stories here (we'll post them for you after they are published) but please feel free to add updates to your stories or comment on other stories by using the Reply button on story post.***

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      Forum Statistics:

      • Threads: 115
      • Posts: 137

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    3. Introductions

      EVERYONE please introduce yourself & meet other parents here! This forum is now used to replace our old Main Listserv.

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      Forum Statistics:

      • Threads: 339
      • Posts: 4,891

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    4. Meet Other Parents Expecting Cherubs

      Forum for parents Expecting CDH babies

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      Forum Statistics:

      • Threads: 342
      • Posts: 7,915

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    5. Meet Other Parents of Surviving Cherubs

      Meet the families of other surviving cherubs

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      Forum Statistics:

      • Threads: 323
      • Posts: 5,494

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    6. Meet Other Grieving Parents

      Forum for those who have lost their cherubs

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      Forum Statistics:

      • Threads: 186
      • Posts: 2,764

      Last Post:

    7. Parents Who Chose To Let Go Early

      A judgement-free place for those that chose to terminate a CDH pregnancy

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      Forum Statistics:

      • Threads: 34
      • Posts: 592

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    8. Dad's Place

      A place for dad's to talk about CDH or sports or whatever they want.

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      • Threads: 6
      • Posts: 39

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    9. Grandparent's Gathering

      Grandparents have a double-dose of worry to deal with; worrying and sometimes grieving their cherubs and worrying and want to make it all ok for their children who are the parents of their cherubs. Here they can support each other and offer advice and info.

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      Forum Statistics:

      • Threads: 7
      • Posts: 93

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    10. Adult CDH Survivors

      A place for survivors 18 - 100 to discuss post-puberty issues, having children of their own, pregnancy as a CDH survivor and other issues.

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      • Threads: 3
      • Posts: 38

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    11. Kid's Korner

      Place for kids 10 and over to talk to other cherubs and siblings.

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      • Threads: 5
      • Posts: 120

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    12. Expecting Babies After CDH

      Having children after having a child with CDH

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      Forum Statistics:

      • Threads: 98
      • Posts: 3,570

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    13. Trying To Conceive

      Trying to have another baby after dealing with CDH (survivors & non-survivors)

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      Forum Statistics:

      • Threads: 26
      • Posts: 382

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    14. Marriage & Relationship Issues

      Having and/or losing a very sick child can wreck havoc on even the strongest relationships. Here you can talk without judgement and hopefully gain some info and support to help .

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      • Threads: 15
      • Posts: 272

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    15. Inspirational Words

      Inspirational stories, quotes and poetry. Please reference authors!

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      Forum Statistics:

      • Threads: 31
      • Posts: 185

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    16. Non-CDH / Miscellaneous

      For discussions other than CDH. Laugh about your kids antics, cry about losing a loved one, vent about your boss... just respect the site rules and you can write about anything here.

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      Forum Statistics:

      • Threads: 489
      • Posts: 9,781

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  5. More Medical Info & Support Threads / Posts  Last Post

    1. In Utero Procedures

      For families of cherubs who had in utero repair, tracheal ligation or other in utero procedures

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      Forum Statistics:

      • Threads: 3
      • Posts: 503

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    2. CDH & ECMO

      Dealing with CDH and Extracorporeal Membrane Oxygenation machines.

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      Forum Statistics:

      • Threads: 20
      • Posts: 370

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    3. Feeding Issues

      Dealing with oral aversions, NG-tubes, G-tubes, Mic-Key buttons, feeding therapies, etc

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      Forum Statistics:

      • Threads: 86
      • Posts: 1,534

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    4. Developmental Issues

      Dealing with developmental delay, cerebral palsy or other cranial, cerebral or behavioral issues

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      Forum Statistics:

      • Threads: 32
      • Posts: 395

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    5. Long Term Pulmonary Issues

      Dealing with pulmonary hypertension, asthma, lung function tests, vent or oxygen dependency, and other lung issues.

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      Forum Statistics:

      • Threads: 27
      • Posts: 278

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    6. CDH & Syndromes

      Dealing with CDH and syndromes or chromosomal abnormalities

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      Forum Statistics:

      • Threads: 8
      • Posts: 44

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    7. Multiple Births

      CDH within mulitples - twins, triplets, quintuplets, etc

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      Forum Statistics:

      • Threads: 3
      • Posts: 21

      Last Post:

    8. Other Medical Issues

      Dealing with chest pectus, scoliosis, allergies or any other medical issue

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      Forum Statistics:

      • Threads: 106
      • Posts: 1,447

      Last Post:

    9. CDH & Growing Pains

      Growing up after having CDH is still an uncharted territory. Here you can talk to other parents about dealing with puberty, playing sports, having children of their own and much more.

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      Forum Statistics:

      • Threads: 18
      • Posts: 381

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    10. More Than 1 Cherub

      Families dealing with more than 1 CDH baby (2% odds)

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      Forum Statistics:

      • Threads: 4
      • Posts: 23

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    11. Medical Care & Insurance Praises / Comments

      Parent opinions on hospitals / doctors / nurses and other medical care providers.

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      Forum Statistics:

      • Threads: 15
      • Posts: 77

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    12. Other Conferences

      Medical conferences, grieving parent conferences, etc

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      • Threads: 0
      • Posts: 0

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      Never

  6. CDH Research Threads / Posts  Last Post

    1. Research Studies (Public)

      Research Studies actively recruiting CDH patients / families

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      Forum Statistics:

      • Threads: 20
      • Posts: 166

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    2. CHERUBS CDH Research

      CHERUBS CDH Research Survey, collaborations on CDH Research with other organizations and other information.

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      Forum Statistics:

      • Threads: 9
      • Posts: 42

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    3. Research Links

      Links to research papers on CDH

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      • Threads: 0
      • Posts: 0

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      Never

    4. Research Papers

      Research papers, articles, and more - also see Research Links!

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      • Threads: 0
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      Never

  7. CHERUBS Volunteers Threads / Posts  Last Post

    1. Meet Our Wonderful Volunteers!

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      • Threads: 0
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      Never

    2. Volunteer Comments, Recruitment and Information

      Want to praise your state rep or find out who to thank for that holiday card? Want to see what positions need to be filled? Here is the info! :)

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      Forum Statistics:

      • Threads: 31
      • Posts: 549

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    3. Volunteer at CHERUBS

      Learn how to volunteer at our charity to help families affected by CDH

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      • Threads: 0
      • Posts: 0

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      Never
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