CHERUBS

Updates on our organization, CHERUBS! Research, web site, newsletters, media, finances, legal, etc. If it's new, you'll find it here!

The latest articles and shows involving CDH and/or CHERUBS members

Web site updates, issues, additions and general web site news.

Public postings of our conferences and events. There is also a private members-only section to discuss details, travel arrangements, etc.

National & International Member Conferences as well as State and Local Get-Togethers

This a PUBLIC forum to post prayer requests. We also have a private one available.

Prayer and well-wishes requests for CDH patients having trouble, family and friends and all other prayer requests

Yes, YOU can make a difference in the fight against CDH! Creative ways to volunteer, info on where donations are needed most, our Angels for CHERUBS Program and much more!

CHERUBS 2010 National Congenital Diaphragmatic Hernia Awareness Campaign. http://www.savethecherubs.org

Help CHERUBS to help CDH families by Adopting a Hospital in honor / memory of your cherub

Help families of babies affected by CDH by helping CHERUBS provide information and support items through our totebag project

Polls, helping us with printed materials, donation lists, new siblings, etc

CHERUBS Congressional Bills for National Congenital Diaphragmatic Hernia Research and Congenital Diaphragmatic Hernia Awareness Protection. http://www.cdhbills.org

Your Vote Counts!

Stories of surviving CDH patients already printed in our newsletter, "The Silver Lining" and our book, "Stories of Cherubs" ***Please do not post your stories here (we'll post them for you after they are published) but please feel free to add updates to your stories or comment on other stories by using the Reply button on story post.***

Stories of CDH patients lost that are already printed in our newsletter, "The Silver Lining" and our book, "Stories of Cherubs". ***Please do not post your stories here (we'll post them for you after they are published) but please feel free to add updates to your stories or comment on other stories by using the Reply button on story post.***

EVERYONE please introduce yourself & meet other parents here! This forum is now used to replace our old Main Listserv.

Forum for parents Expecting CDH babies

Meet the families of other surviving cherubs

Forum for those who have lost their cherubs

A judgement-free place for those that chose to terminate a CDH pregnancy

A place for dad's to talk about CDH or sports or whatever they want.

Grandparents have a double-dose of worry to deal with; worrying and sometimes grieving their cherubs and worrying and want to make it all ok for their children who are the parents of their cherubs. Here they can support each other and offer advice and info.

A place for survivors 18 - 100 to discuss post-puberty issues, having children of their own, pregnancy as a CDH survivor and other issues.

Place for kids 10 and over to talk to other cherubs and siblings.

Having children after having a child with CDH

Trying to have another baby after dealing with CDH (survivors & non-survivors)

Having and/or losing a very sick child can wreck havoc on even the strongest relationships. Here you can talk without judgement and hopefully gain some info and support to help .

Inspirational stories, quotes and poetry. Please reference authors!

For discussions other than CDH. Laugh about your kids antics, cry about losing a loved one, vent about your boss... just respect the site rules and you can write about anything here.

For families of cherubs who had in utero repair, tracheal ligation or other in utero procedures

Dealing with CDH and Extracorporeal Membrane Oxygenation machines.

Dealing with oral aversions, NG-tubes, G-tubes, Mic-Key buttons, feeding therapies, etc

Dealing with developmental delay, cerebral palsy or other cranial, cerebral or behavioral issues

Dealing with pulmonary hypertension, asthma, lung function tests, vent or oxygen dependency, and other lung issues.

Dealing with CDH and syndromes or chromosomal abnormalities

CDH within mulitples - twins, triplets, quintuplets, etc

Dealing with chest pectus, scoliosis, allergies or any other medical issue

Growing up after having CDH is still an uncharted territory. Here you can talk to other parents about dealing with puberty, playing sports, having children of their own and much more.

Families dealing with more than 1 CDH baby (2% odds)

Parent opinions on hospitals / doctors / nurses and other medical care providers.

Medical conferences, grieving parent conferences, etc

Research Studies actively recruiting CDH patients / families

CHERUBS CDH Research Survey, collaborations on CDH Research with other organizations and other information.

Links to research papers on CDH

Research papers, articles, and more - also see Research Links!

Want to praise your state rep or find out who to thank for that holiday card? Want to see what positions need to be filled? Here is the info! :)

Learn how to volunteer at our charity to help families affected by CDH